Observe World Psoriasis Day Every October 29
Have you heard of psoriasis? If you pay attention to drug commercials the answer is probably yes. But do you really know what it is? Many people don’t realize it’s more than just an itchy rash. And that’s why we need World Psoriasis Day.
The day began in 2004. And while we’ve learned a lot since then, including adding new treatment options, there’s still a lot to do.
So every October 29 researchers, patients, and anyone else who cares join together to raise awareness not just of the disease but of the need for more research and better access to appropriate treatments.
The International Federation of Psoriasis Associations (IFPA) organizes the day each year.
A Few Psoriasis Facts
First off, psoriasis is not your typical rash. Although it can look like one when it first starts.
The “rash” or “plaques” are actually skin cells growing too fast and building up in red, scaly patches.
Why does this happen? Nobody is quite sure. But scientists agree it’s an autoimmune disease, so your immune system has a major role. But something else also has to trigger the disease.
Also, psoriasis isn’t just one disease. There are several different kinds, and they can each look very different. The most common kind is plaque psoriasis. It causes the raised, red, scaly patches you probably think of as psoriasis (if you think of it at all).
But there’s also inverse psoriasis which is mostly smooth, shiny red patches. And pustular psoriasis is just like it sounds: lots of blisters filled with pus. Plus more. None of them are contagious (not even the pus).
Treatment options range from topical creams to UV light therapy and even biologics. Unfortunately, finding the right one for you can be hard. The same treatment doesn’t necessarily work the same in different people. Even if they have the same kind of psoriasis. And other medical issues you may have can limit your options.
World Psoriasis Day Themes
The IFPA sets a theme for each year’s observation that highlights a particular issue related to psoriasis. The theme also provides a unifying message for the day’s activities.
For 2020 the theme is INFORMED. Because it takes good data and information to help people with this condition achieve a good quality of life. And of course, if you have psoriasis you want as much information as possible to help make the best choices for yourself.
In 2019 the theme was CONNECTED, as in connecting individuals to the larger psoriasis community. This includes other sufferers as well as being able to access the appropriate health care & treatments.
For 2018 the theme was Treat Psoriasis Seriously. It’s not just an itchy rash. It’s a serious condition that can have serious effects on the people who have it.
A few more previous themes:
- 2017 – Psoriasis Inside Out
- 2016 – Breaking Barriers
- 2015 – Hope. Action. Change.
Scroll down for some ideas on celebrating this unofficial and uncomfortable holiday.
Ideas for Celebrating World Psoriasis Day
Consider helping to spread the word about this disease and advocating for people with psoriasis. It can strike anyone at any time. So who knows, you could be advocating for your future self. Or someone you care about.
There are marathons, walks, and other events throughout the country to raise awareness and funds. Why not see if there’s one near you? They’re not all on October 29 (in fact they’re held throughout the year), so make sure you check the date of any that interest you!
If you’re not quite ready to be that active, consider learning more about the disease, its symptoms, and treatments. Maybe start by signing up for the National Psoriasis Foundation’s email list (the sign-up form is in the footer of the page).
If you have psoriasis and haven’t yet connected with others who also have this condition, this is a good day to do that. One option might be the National Psoriasis Foundation’s TalkPsoriasis Support Community. Both patients and their loved ones are welcome.
If you feel comfortable, you might also like to share your story. Many people with psoriasis don’t realize how many others have it. The more people who speak out, the more we can all learn.
How will you be a part of World Psoriasis Day this year?
